i have had the week to sort of soak in what happened at the neurologist's on Monday. Sure the MIT's thing on Thursday messed up part of it, but i have absorbed enough to feel......on hold.
i didn't walk in to the appointment with any expectations but to have an assessment, and a game plan. i walked out with exactly that. i am to have a brain MRI and a spinal MRI, blood work (already done) and an EVP test followed by another appointment with him. i don't know when the MRI's are yet, but am going to be calling them to be put on the cancellation list. The sooner the better. The EVP test is on the 23rd of March (yes i said March), followed by seeing Dr. M again. So, i feel like i am on hold. Dr. M did say it could be an inflammation of the spinal column, but no for sure.
So, i am stuck. i can't drive, i can't feel my left side. my thinking is slow. my fingers don't work right. i have so many cant's, and don'ts i can't see the cans and dos. my Independence is gone. i have to count on others to drive me around for simple things like getting pop or any type of groceries. Appointments have to work around other people's schedules. i just can't get in my van and go for a drive to escape the city. i can't even go camping in my back yard, because i am unable to chop wood.
The worst part of it all, is how tired i get. i get the MIT ready for school, and do some dishes, and i need a sleep. Not a nap. A 4-5 hour sleep. i think the max i have been awake at a time has been Thursday, and that took sleeping for 16 hours of sleep as a recovery time. i don't know if it is the emotional tole to not being able to do what i need or the physical tole of doing what i need that is knocking me for a loop. i just know i am tired. Physically tired all the time.
i want an answer. i want a course of action. i want to know what to expect (oh yeah, and the doctor saying he doesn't think there will be much permanent damage didn't help). i want my damn life back.
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