A week in review

Last weekend went great. We had a great time going camping. Sure it was chilly, but we had the heater and a nice fire to keep us warm. Add the bonus of a nice sunny Sunday and a slightly sunny Saturday, and we had a great time. MIT tried fishing again. He got bored again. We did get to see gaggles of Canadian Geese fly in and land on the lake. Now there is a sound that is undescribable. Even Dad enjoyed that part. There was no rain. It was great. The only problem was after we had packed up and were ready to go. The Beast (van) didn't start and we had to wait for CAA to save us. Oh, and yes we are going again in November. i know some people will think we are crazy, but we are all enjoying the quiet, the undivided attention of each other, and the learning how to survive in that kind of weather. i can actually see us possibly doing this every month (well, we will see). i know that next year we will be doing more camping. It is just fun.

After getting back from Camping, i found out my friends got together and did a head shaving. God i was hurt. No one talked to me about it. i could have done it while camping and had Dad and the MIT help me. It would have added something to the weekend. It isn't just that though. i am the kind of person that will sit back and wait for someone to ask for help. i put out the offer, and then let them come to me. i don't want to be over crowded when i am going through a crisis, so i try not to do that to others. They haven't really called. On top of that, i haven't heard from L&D since camp or since the announcement about D. i have left messages, but heard nothing. i probubly insulted them again, but they aren't telling me. Same as last year i take it.

News about D is not good. D isn't getting any better. She is getting worse. She isn't strong enough for chemo. It is a wait and see now.

News about the MIT isn't good. He is seizing more and more. He seized at least 4 times on the camping weekend. We have upped His meds. He doesn't know. He doesn't need to know. He is convinced He doesn't have seizures, because i have said all these years that His AHC wasn't seizures. He isn't ready to know He is getting worse. The school has noticed. They have seen Him using His chair more and more. The thing i see every day, is my child dying. The more seizures, the more chance of stuff going wrong, and the prognosis at this point is more seizures until He dies. This sucks

Other than that, this week has been quiet. Nothing really happening here at home. i have been taking care of the house. i have been doing dishes. i have been doing laundry. i have been taking my meds. i have been watching my blood sugars lower. That feels good. i have been vacuuming and stuff. The house actually feels tidy and clean. i have been heating the house with candles again.

The only exciting thing was that M and La and baby girl came over Tuesday night. It was nice having them all here. Today i am going to their place for some quiet and alone time with M. Plus, tomorrow i don't have to come home early, so will get to spend some time at the hobby shop watching, and maybe participating in a few Magic games.

OK, time for a shower and to get dressed and to finish packing up my stuff for the treck out.