Another one dead

This entry deserves a space of its own, so that is why i am posting it now.

Another "kid" with AHC has died. She was the oldest living person with AHC. She was 44 years old. She had a sever seizure, that left her unconscious until she died. Her body lived 1 week after the seizure, never waking up. She was from Montreal. She was what all parents of kids with AHC had looked to as a "bright light" and a chance at a future for our kids. She is gone now.

i never met her. Either has the MIT. It still feels like someone in our family has died.