Make-A-Wish

Originally posted Nov 30, 2005 :

So, yesterday the people from Make-a-wish came and talked to the MIT. Prior to their arrival, MIT and i wrote up what His wish was, just incase He went full blown. Here is what He wished for:
I wish to go to HollyWood. I want to visit TV sets and watch a show.
I wish to meet:
Jim Carrey
Mike Myers
Robin Williams
Will Smith
Jackie Chan
Jimmy Kennedy
Daniel Radcliff
Rupert Grint
Emma Watson
David Thewlis
Michael Gambon
Robbie Coltraine
Nelly
Eminem
x-ibit
Missy Elliot
Bow Wow
the Black Eyed Peas
Ludichris

 I wish to do all this because i want to know what it is like to be an actor and a rapper and a comedian.

i think this is a great wish. Now all i have to do is fill out all the paper work. Lots of paper work.

Well, the time has almost come.  The wish is in gear and all we are now waiting for is my passport, and the dates we are going.  That is right, the MIT is getting His wish.  We are going to New York City to meet Mike Myers.  We will be staying at the Hyatt.  We will be flying to New York.  We will be taken to the air port by a limo.  We will be there for 4 nights/5 days.  It is pretty exciting. 

Here is the delema.  It is another sign that the MIT is progressive, and bound to get worse.  Originally, when we placed the wish, Mike was going to be going with us.  Mike was key in helping me come to terms about actually applying to Make-A-Wish.  Mike spun hope around the fact that it all didn't mean the MIT was going to die tomorrow.  Now, there is signs of the MIT going downhill. 

His ballance is getting worse.  He is loosing more and more words.  He stops breathing more often during His sleep.  His heart rate is dropping more and more during His sleep.  When He has a sever episode, He tends to faint and loose consciousness more often. 

With Mike gone, i tend to feel less equipped to handle these episodes.  Mike was always my backup that i could call and hear that He was either coming to look at the MIT, or that the MIT would be fine.  If the MIT got an injury, Mike was the first person i called.  Mike would come and check on the injury, i could feel more at ease.  Now i don't have that backup.  my Mom isn't able to do that for me.  She either resents my calling, or helps push my stress over the situation to  a trip to the hospital.  my Sister can't, as she doesn't have enough knowledge in the area, like Mike did. 

This whole trip is a double edge knife, hitting me right in the heart.  It is the realization that, although it may not be today/tonight/tomorrow, the MIT is going to get worse and worse.  It is the reminder that Mike is not there to go with us or to help with the medical aspect that the MIT and i need.  It is also a great opportunity for the MIT to meet one of His idols, and, if it happens before Christmas, to get hard to buy for friends autographs as their presents.  i just really wish i didn't feel so down about the trip and could just keep the upside feelings from getting buried under all the grief and worry.

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